HomeAdvocacy

How you can be an Advocacy Leader in 2018

Opportunities to Lead in 2018:

Vote - In Ohio, the primary election will be on May 8th + the November Election

Write a letter/email - https://www.usa.gov/elected-officials/

Schedule a meeting

Attend a town hall meeting

Know when Congress is out for recess - holidays i.e. Easter, Memorial Day, all of August

Attend the #NLNVoices Day on the Hill June 13-14

Volunteer to support issues/ elected officials

NPAF

National Patient Advocate Foundation - provides search for elected officials by zip code

http://cqrcengage.com/npaf/app/lookup;jsessionid=12zbobb8jbptu1vej4yopxf9nj?2&m=60005

 

The NPAF also provides lists of current State and Federal Bills that are being debated

http://cqrcengage.com/npaf/billtrack

 

Advocacy Resources

Resources:
ONS Health Policy Advocacy: https://www.ons.org/advocacy-policy

United State House of Representatives: http://www.house.gov/

United State Senate: http://www.senate.gov/

White House Cancer Moonshot Initiative: https://www.whitehouse.gov/CancerMoonshot

NCI Moonshot: http://www.cancer.gov/research/key-initiatives/moonshot-cancer-initiative

American Nurses Association: http://www.nursingworld.org/MainMenuCategories/Policy-Advocacy

Nursing Community: http://www.thenursingcommunity.org/

US House Nursing Caucus http://www.aacn.nche.edu/government-affairs/House-Nursing-Caucus-Members.pdf

US Department of Health and Human Services http://www.hhs.gov/

CMS https://www.cms.gov/

NIH https://www.nih.gov/

NINR https://www.ninr.nih.gov/

FDA http://www.fda.gov/

HRSA http://www.hrsa.gov/index.html 

NLN:

http://www.nln.org/advocacy-public-policy/government-affairs-action-center

Ohio HB 456

Ohio Nurses Association Applauds Introduction of House Bill 456 – Prohibit Requiring Nurses to Work Overtime

 

**  June 2018 ** Passed Ohio House - if passes Senate Ohio would be the 19th state to prohibit mandatory overtime**

Bill addresses safe patient care, would make Ohio 19th state to outlaw mandatory overtime for nurses

 

COLUMBUS – House Bill 456, sponsored by Representative Robert Sprague (R-Findlay), aims to make Ohio the 19th state to outlaw nurse mandatory overtime – a potentially dangerous practice occurring across Ohio that can jeopardize safe patient care. The bill was introduced on December 28, 2017.

In 2011, the Joint Commission issued an alert that called for hospitals to intensify their efforts to monitor and address health care workers’ risk for fatigue caused by extended shifts. Even after this alert, it is still common place in Ohio to mandate RNs to work beyond their regularly scheduled hours. This practice is used to staff health care facilities on a regular basis and leads to nurse fatigue and burnout.

Fatigue can affect nurses’ ability to deliver optimal patient care. Research demonstrates that fatigue causes an increased risk in errors, decline in memory, reduced ability to learn, and impaired mood and communication skills. Further, scientific evidence links long working hours to many health effects, including cardiovascular disease and cancer.

House Bill 456 would give nurses the right to refuse overtime if they feel too fatigued to continue to provide safe patient care without fear of termination or licensure sanctions.

“Nurses are professionals who are ethically-bound to assess their ability to care for their patients. If a nurse is too fatigued to provide the safe care his/her patient deserves, the nurse should have the right to refuse overtime without fear of discipline,” states Brian Burger, president of the Ohio Nurses Association. “Prioritizing safe nurse staffing benefits everyone: nurses, patients and healthcare facilities. Research points to dissatisfied patients, increased errors and higher patient readmissions when nurses are not safely staffed. Furthermore, nurse burnout increases with regular extended shifts, leading to costly nurse-turnover for healthcare facilities,” continued Burger.  “The needs and safety of the patient and nurse need to be put first instead of trying to cut initial costs by using mandatory overtime to plug nurse staffing holes.”

Federal laws prohibit the amount of hours worked by pilots, train engineers and truck drivers because of the dangerous consequences of fatigue. Because there is a not a federal law protecting patients and nurses to this degree, 18 other states have passed laws prohibiting nurse mandatory overtime. Those states include Alaska, California, Connecticut, Illinois, Maine, Maryland, Massachusetts, Minnesota, Missouri, New Hampshire, New Jersey, Oregon, Pennsylvania, Rhode Island, Texas, Washington and West Virginia.

Title VIII Nursing Workforce Reauthorization Act of 2017 (H.R. 959/S.1109)

Reauthorization Act

Please take a minute to send a message to your Senators and Representative requesting them to co-sponsor the Title VIII Nursing Workforce Reauthorization Act of 2017 (H.R. 959/S.1109). This legislation would reauthorize the Nursing Workforce Development Programs (Title VIII of the Public Health Service Act) through Fiscal Year 2022 and aligns them with current trends in the profession.

http://www.aacnnursing.org/Policy-Advocacy/Get-Involved/Take-Action

 

The Cancer Care Planning and Communications (CCPC) Act

 

Congressman Mark DeSaulnier (D-CA) and Congressman Ted Poe (R-TX) recently introduced the bipartisan Cancer Care Planning and Communications (CCPC) Act, H.R. 5160. As Reps. DeSaulnier and Poe are both cancer survivors, they understand the physical and emotional benefits of care planning for patients and their families facing a cancer diagnosis.

Most cancer patients still do not receive a written plan that explains their diagnosis, prognosis, treatments, and expected symptoms, leaving them to navigate the complexities of a cancer diagnosis without clear direction or knowing what to expect from their care. Research has confirmed that coordinated cancer care outlined in a written care plan—care that integrates active treatment and symptom management—improves patient outcomes, increases patient satisfaction, and reduces utilization of health care resources.


Pilots don’t take off without a flight pattern, and architects don’t break ground without a blueprint. Patients diagnosed with cancer are taking the journey of their life, literally, so the role of the cancer treatment plan in starting a conversation, in promoting comprehension and retention, in managing expectations and anxiety, and providing continuity across settings and episodes is so important.
Participant from previous NCCS workshop on cancer care planning.
NCCS is joined in support of the CCPC Act by 31 patient and professional organizations and 18 cancer centers.
Read the CCPC Act Fact Sheet [PDF] »

What Does the CCPC Act Do?

Care Coordination InfographicThe CCPC Act encourages the development of a personalized cancer care plan for Medicare beneficiaries.

The CCPC Act will:

  • Help cancer patients through the difficult process of cancer diagnosis, treatment choices, treatment management, and survivorship care by supplying them with a written plan or roadmap.
  • Promote shared decision-making between patients and their cancer care teams and support informed decisions, as treatment choices are becoming increasingly complex.
  • Empower patients with information necessary to help manage and coordinate their care through diagnosis, treatment, and survivorship.

The CCPC Act was previously introduced as the Planning Actively for Cancer Treatment (PACT) Act in past Congresses, and continues a longtime effort of the National Coalition for Cancer Survivorship to increase cancer care planning implementation throughout the country.

View a sample care plan [PDF]


Take Action—Contact Congress

For reference when contacting your representative, use our CCPC Act Fact Sheet [PDF].

Write Your Member of Congress

 

https://www.canceradvocacy.org/cancer-policy/ccpc-act/?mc_cid=6733cffff5&mc_eid=3ce6ce444b

 

 

 

NLN Capitol News

Note- this information is from the online NLN Capital Connections Newsletter:

http://www.nln.org/newsroom/newsletters-and-journal/nursing-education-policy-newsletter

       

June 5, 2018

NLN SUPPORTS OPIOID LEGISLATION — JOIN OUR CAMPAIGN
 
capitol connection 1     The House of Representatives may vote on opioid legislation in the next two weeks. Support the NLN's advocacy campaign on the Addiction Treatment Access Improvement Act HR 3692/S 2317 — write your US Representative and Senators today!

Opioid use and dependence are growing public health threats, despite the many actions put in place to try to curb this crisis. APRNs are critical agents in treating patients that experience these crises, and are sometimes the sole providers of this care in regions that struggle to recruit and retain providers. Read more...

BUSY MONTH FOR OPIOID LEGISLATION IN THE HOUSE
 
capitol connection 2     Last month, the House Energy and Commerce Committee held a markup and advanced 32 more bills to the House of Representatives to help combat the opioid crisis. Twenty-eight of those bills were passed by voice vote. In an Energy and Commerce Committee markup held the week of May 7th, 25 bills to combat the opioid crisis were advanced, bringing the total number of bills passed by the committee to 57 this month. Read more...

SUMMER PRIMARY ELECTION SCHEDULE
 
capitol connection 3     Today is primary election day in nine states. Twenty-two other states will also hold their primary elections before Labor Day. To find out when your state primary election will occur this year, don't forget to check out the January 9 #NLNVoices Action Center blog post on the importance of voting.

Remember #NoVoteNoVoice. Read more...

SENATE HELP COMMITTEE HOLDS HEARING ON FEDERAL NURSING PROGRAMS
 
capitol connection 4     Last week, the Senate Health, Education, Labor, and Pensions (HELP) Committee held a hearing entitled "The Health Care Workforce: Addressing Shortages and Improving Care" which focused on how can federal government help reduce shortages of health care in rural areas. Public witnesses testified how grants they received from the health care workforce (Title VII) and the nursing workforce (Title VIII) programs at the Health Resources and Services Administration (HRSA) helped to improve the care in their respective communities. Read more...


How to Register to Vote
 
capitol connection 4     There are as many reasons to vote as there are voters. Many people vote because they are for or against an issue or candidate.   For others, voting is about ensuring high voter turnout in the community, which results in greater access to elected officials and more of a say in decisions affecting your community. Whatever your reason – you should register to vote if you have not already done so. Remember #NoVoteNoVoice. Learn more...